finally progress

Ahsoka has really been overly difficult. I know all the techniques I’m using well so why it has gone so badly I do not know. Well yes I do.

So it really is my health. Take tonight for example. I am not fit for doing anything right now. I need to go to bed. This time tonight is “wasted” because I can’t do anything productive. But I also have this horrible issue of insomnia.

I’m too tired to do anything but I am far too awake to sleep.

And I can’t even “reset” by going to bed later. Anything I do in this physical state has a higher cost that even my normal. So I really can’t stay up later a few nights. That is several hours extra use of my physical resources. And I can’t catch up on it except by rest.

That said. The B12 injection has been great. I may see if I can get another this week instead of fortnightly. Which I am allowed to do. I may see if next week helps, then do fortnightly for a couple of months then a maintenance monthly shot.

Oh the trick to these? bend arm at elbow and pretend to play a keyboard. Tricks the nerves. At least for long enough to let it settle 🙂

I have also passed the printing on to someone else. I know everything I need to do for it and I cannot get it done in time. I need to set the temp higher and make/buy a cover so that the heat is maintained. So thanks to the hobbyist community I save a good week of watchinbg my printer. I still don’t trust a machine that heats up as high as it does!

 

But further to progress: the montral are curing. Thank goodness. Still going to be a few days.

I have new tunic fabric. It’s very slippery so internal knickers have been cut as well.

I think I can use my scrap faux suede for the underbelt- the one that fits fairly closely.

The leatherwork I have done looks good and I have enough paints, sealer, and cleaner.

And there is a seam up the back of the greaves and darnit I’m going to cut right up the back regardless of the impossible continuous upper section. Why??????

So that rib

Turns out it’s broken, healing but broken. Cartilage does not show up on xrays though and here is weirdness at the jon between bone and cartilage so I will ask for further investigation.

As for what can be done… nothing. Pain relief. But nothing.

very sore indeed

I may have to face the fact that my infusions are wearing out and I need to get ahead of the pain rather than treat it as it happens. I can hardly walk at the moment due to weirdness. I think it’s a mix of nerve pinching and muscle wasting after that nasty nasty bug.

I’m wearing heavy boots, it’s true but that’s also to try and build up strength again. I tried going for a walk and got to the end of the street and wanted to go back home :/ And today it was just the length of the drive! I’ve been standing and doing things but actually walking- my legs feels half numb like I’ve been sitting on my knees for a while!

But my wrists are also really acting up (note- hand surgeon appointment next month) and I’m sore all over like with the flu. So that’s usually the start of a big flare. But I don’t want to take steroids. I may try upping my Leflunomide again. Right yes. It’ll take longer but will last longer.

 

a recommendation- health

So for regular readers or those who simply land on my site or page can tell, I don’t do paywalls, nor sponsorship. I want to be free to promote things that have really made an impact 🙂 I don’t like putting bad feedback out there as it is so permanent and may still be around even when a manufacturer/seller does make changes.

Anyway. This post is brought to you because I am upright after figuring out how to arrange my pillows so I could breathe last night and that I am remaining upright thanks to a nasal spray that actually works- it’s a bit stingy as it has tea tree in it but well.. This is the first time I have painlessly reduced congestion from a cold ever.

So it’s Fess.

I may have used it it little differently because I found the spray actually did the thing it’s supposed to and with nasal passages so full that you can’t breath that’s impressive.

So I sprayed, cleared into a tissue, and repeated because I was so congested.

Anyway, my nose was not happy the first time I used this as the tea tree oil is very astringent. but it does have moisturising agents so it didn’t last for long. It also did sting my tonsils- yes it really does clear congestion that much! But wow.

Okay so it’s so good I need to be careful to not over use it 😉

Oh and it leaves a pleasant taste. And everything also smells slightly minty. And that is indeed a wonder while leaking germs!

 

For those curious about the pillows- I have a habit of rolling on to my back at night- usually not good but actually the only way to breathe while the virus is super active. So I used a feather pillow to make supports for my head and my normal pillow for my upper back and shoulders to keep my head raised. A tiny bit cheaper than those electric head options though man.. they seem like the perfect future bed option.

 

So I am going to attempt to have a day of gentle sewing catch up 🙂

the steroid shot has worked

While I wouldn’t say it’s a cure it has helped decrease local swelling to the point I can genuinely test what is going on.

http://www.fprmed.com/Pages/Trauma/Costochondral_Seperation.html

Go down two more ribs and that’s where mine is. I finally was able to do a very gentle test of the hook manoevre and I did at least find the natural edge of the cartilage curve 🙂 And it moves with breathing.

I can even sit upright for a while now :0 Breathing is weird as the muscles that attach to that rib feel stretched and so also feel like they are cramping. So I don’t want to move it all too much.

 

Also that amount of inflammation set of a mini relapse of my RA, and also ummm… inflammation in the abdomen. But I think that has settled as well.

 

Still a long road to recovery. And there is a lot of mixed information out there about treatment.

whoops, fell into a research rabbit warren

In order to figure out history of the gown I wound up with dozens of reference notes about the production of garments and how there are multiple copies and why.

I still haven’t found the specific references I want (all secondary atm) but enough to feel confident in several statements made.

But there are some conflicting descriptions of materials, I have my suspicions about why so will also have to discuss those.

So yeah. I can now start the day and do things.

 

But I also will have my abs juice ready to go today and the latex work of yesterday will hopefully pay off today. Unless it didn’t adhere in what case I get to strip the base back and redo it. IsoPro does work but it is a PITA to time correctly. The latex needs to be clean and dry for the next layer of latex. But with a very damp climate there is a fine layer of moisture on anything outdoors- or in a room without insulation.

 

What else… Oh yes. I need to bleach my sateen panels for my 1870s gored stays. I worked out what I need vs the original pattern styles so will also see if I can make one in red sateen finally. I have tried to do this in the past and somehow wound up with stays too short.

What I need from stays is less about squish as it is about reducing stress on ribs. My current pain is a very good reminder! My ribs are very long, there is barely two fingerwidths distance at the side of my waist between ribs and pelvis. So this means if I want a wasp waist I either deal with ribs being heavily squished or I make it nip in only at that narrow point. Or I can avoid too much restriction and taper the stays to the waist then flare out over the hip.

This last one is what I find gives a shape that is both acceptable to a modern eye as well as historic. If I nip in only at the waisy it tends to make everything else seem disproportionate rather than drawing the line in.

So today will be spent cutting fabric and bleaching to have a summer and winter variation. There may even be enough silk satin left over, though that feels a bit extravagant!

 

why one must use all resources!

After removing all the dye from my Sunburst silk I had another look at the information available. I wanted to see what the silk would do as UV light worked on the last remaining colour remover molecules. before even thinking about dyeing it.

I can’t dye the skirt, it has already been fused to a cotton backing 🙂

And then promptly lost the exact quote I wanted. And just found it again. Anyway. There will be a references guide added to my site soon as a page, because I think it needs a little more formality than a blog post 🙂

I noticed also an historic homestead has started folloiwn on instagram so feel a tinybit of pressure to you know, include content they might be interested in!

And I have gone and cracked the cartilage in my ribcage. I am used to being able to sort of.. slip it- painful- but this was a little extra pressure on one point and so now it needs to repair. Luckily it is quite a sharp continuous pain- no I don’t like pain but as a warning, as a limitor it’s fine 🙂

And there is a steampunk event tomorrow. I really wanted to wear Mina, but I would have to spend all day on the bodice… hmm… but I cn’t really do any kind of corsetry until my rib heals. So no. I’ll wear something else 🙂

fatigue

I struggle to explain how I can tell I have fatigue versus being tired.

It does physically feel like pressure. But I think that veers a bit close to what is said is experienced in high anxiety.

It’s not the same.

This is more like standing chest high in water and trying to breathe. It’s not pressure on the chest, but the feeling of being pushed in all directions, and no matter how deeply you breathe it feels like air is being pushed out. And sometimes that does actually happen.

Much like in water limbs feel strangely supported and heavy at the same time.

 

anne of cleves continues

I did manage all the brocade stitching yesterday. I need to press it before stitching the joins but basically six rows of more than 4m a row through metal brocade was a nightmare.

Yes that is overlocking, no it will not remain for long. I do need to get some tape over the seam allowances but this keeps the edges stable until then. It may not be possible to find enough linen to make facings.

I think you may be able to tell the thickness from these photos, but that is a big needle. I need big needles so I can use all my fingers to push the needle through. Usually I can do this in a way that doesn’t require a thimble but this was so grippy… my needles did need to be pushed through at the very end and I can’t use thimbles so I have a bit of healing to do.

note: calluses are not good. They are brittle and less able to resist the pressure from a needle end.

I am looking at a leather thimble for my ring finger though. I sew and write using all my fingers anyway due to how my fingers curve unhelpfully, so I’ll test thimbles on each finger to see what works best.

No I am not able to use short needles please do not recommend ways of using them. I am though looking at just restocking more frequently. Pincushions have the sharpener for steel needles. Well most modern needles are chromed. This means you can’t really sharpen them to the same degree. Also the profile of the points can vary so I need to look to see if there is a specific brand and type that i can continue to buy.

I’ll see if I can get some photos/video of why short needles are so bad for me!

okay, interesting reading on bone loss

I was trying to find some real research on costs and benefits of non-medicine therapy (diet and exercise) and it’s pretty much all reliant on assumptions. Also no real follow up. Long term is not two years. Not when you are living with a genuinely long term disease.

For example, the bone loss thing. It’s a mix of factors (very good easy read but very long), but primarily the disease itself suppresses bone reformation- probably to prevent the joints becoming a big lump of bone.

Pretty much every negative effect of the disease is actually the body trying to stop the disease.

~`Low iron count? Iron is used in inflammation so this is a fast way to slow it down

~High ESR- again, clump those red blood cells together so the iron is hidden from being used for inflammation.

~Osteopaenia? endogenous glucocorticoids are released in inflammation, as anti-inflammatories. They do the same damage to bone as the pills we take. (I also suspect it is to prevent joint fusion/deformities. I’d like to see if that bears out but I’ve been impressed with how my accessory bones seem to have been resorbed first.

 

We also have poor nutrition. Now this is not to say we make poor food choices! here’s the thing: http://joe.endocrinology-journals.org/content/201/3/309.long

Chronic inflammation is frequently complicated by poor nutrition. This is partly due to inflammation directly inducing a highly catabolic state.

And:

It is predominantly manifested by a reduction in lean body mass.

The disease changes our metabolism and reduces lean body mass itself. There is so much focus on how we are less active, but yes, if I look back to my early years I noticed extreme body changes that did not correlate to previous exeriences.

Calcium and vitamin D are important in maintaining adequate mineralization of bone. Deficiency is associated with attempts by the body to overcome the problem by increasing PTH secretion.

Which leads to:

This increased RANKL expression increases bone resorption through an increase in osteoclastogenesis.

Basically there is a vicious cycle of bone resorption to try and make up for lack of calcium and Vit D. And these are first affected by poor absorption- usually due to gut inflammation.

Inflammation related bone loss is an important clinical problem and several approaches have been used in its prevention and treatment. One approach is to try to reverse the underlying mechanisms that cause the bone loss. Exercise and improved nutrition would seem to be logical treatments where reduced mobility and poor nutrition are implicated. Where exposure to therapeutic glucocorticoids is implicated, it would seem logical to try to reduce the dose given or use alternative anti-inflammatory agents. Unfortunately, these manoeuvres are usually not possible due to the nature of the underlying disease.

I love honesty like this. It means I can focus on treatments that work and not waste resources on treatments that don’t.

 

So basically if I could find a trainer to work with me every day and not only create a training schedule that works but is also adaptive and we can alter it at will that would be great.

The problem is I have no access to a trainer every day.

I have looked into local gyms and looked for specialised trainers. There are none.

At the moment the best recommendation is to just try and stop if you hurt yourself.

Well that’s going back to the driving without a fuel gauge thing. I think I’ll keep sticking to my low inflammation diet (which changes depending on how I respond to it- and it is personal it’s all about what causes me inflammation and that tends to be sticky starches and fats) and low inflammation exercise.

Luckily I live on a nice fairly flat area and I have walking routes that are very short, short, medium, and long. And generally I can tell at each turn if I can go the next distance.

I also try to avoid boosting iron but I do boost protein, B12, and folic acid to help build red blood cells. It’s helped a lot. Like a crazy amount. My anaemia is much lower. This is through diet not supplements.

Very lucky I can do this as I do not do well on red meat or completely vegetarian. Yet others do better being vegan or fully red meat. It really is individual and it really does make for difficult choices if there are reasons beyond physical health that impact your life.

I do prefer changes in what I do over medical intervention but there are aspects to this disease that we have little control over.

Accepting that is a step to finding our best chances. I will continue to try to balance what I can with the tools I can use.