very sore indeed

I may have to face the fact that my infusions are wearing out and I need to get ahead of the pain rather than treat it as it happens. I can hardly walk at the moment due to weirdness. I think it’s a mix of nerve pinching and muscle wasting after that nasty nasty bug….

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gaming limitations

I have tenosynovitis right across both hands, a result of Rheumatoid Disease. My ulnar has shifted to sit on top of my carpal bones as well. This is obviously fairly catastrophic over time but with splinting and therapy I should be able to get more use before limiting surgery. I need to take care of my…

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that latest therapy

  The media hypes up medical advances as much as anything, in fact often even more. And those of us with chronic illness are often caught between the hype and people who care about us as well as people wanting to be the first to share. It is exhausting. Because I am indeed always searching for information…

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