How do people around you treat you when normal communication isn’t possible? I’ve been lucky. At my last physio appointment I felt myself wind down, I was half way through a sentence and fibro just slammed down the gates to speaking.
That really is what it feels like. A shuttering of voice, a shuttering or words. My hands are mulch so I didn’t even have the opportunity to write what I needed down. I don’t know if I could.
And I’m still not even able to express what kind of pain I was in. Which probably means it was deep in my muscles though still probably the myofascia.
I wanted to cry, but there was nothing unusual in input vs pain.
I just shut down.
It scares me because this is going to happen more frequently as pain care is eroded ever more.
But I’m me. I’m here. If I shut down precisely because therapeutic treatments trigger a deep pain response that bypasses acute pain messaging? I’ll make some physical and digital cards going forward.