like swimming upstream

Life with chronic pain and fatigue is complicated. Especially when that interferes with day to day activities. I had a bit of a wake up call recently as I tend to not think about where in the disability spectrum I reside. But it turns out I fit this “more-disabled women – defined as having their day-to-day activities “limited a lot” by their health.”

I mean. I know that is my situation. But it still is a bit confronting.

I have to limit slightly more than I want to as well, because there is usually a sharp drop if I meet a limit rather than avoid it.

I can still be happy and optimistic about other parts of my life. I enjoy music, and shows even if I have to keep part of me from remembering that I was supposed to have a career in performing. I can still enjoy art I created years ago even if I’m not sure if I’ll be able to make anything from this point on.

And I have to be honest, I’m now a few years down a path of increasing difficulty with even small projects.

Today I edited a blog post to republish on my new site. It is an important one for my Anne of Cleves research.

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