life with disability/illness

the steroid shot has worked

While I wouldn’t say it’s a cure it has helped decrease local swelling to the point I can genuinely test what is going on. http://www.fprmed.com/Pages/Trauma/Costochondral_Seperation.html Go down two more ribs and that’s where mine is. I finally was able to do a very gentle test of the hook manoevre and I did at least find …

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life with disability/illness

sigh

I have one of the only, if not the only plugin capable of reblogging instagram posts. But It doesn’t actually automatically do so and I have to set it to pending/draft then edit to “published” because otherwise it just shows the code- my guess is the post publishes faster than WP can add the media …

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life with disability/illness

So tired again

I try to not be around people (online or off) when I am this tired, and now I have a lovely reminder why- I simply can’t communicate properly. And on the other hand when I am this tired my eyes tend to go dead and I look furious. Actually I look in pain but it …

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life with disability/illness

final round of tidying

(it is a happy post, honest!) Managed to go through all my paperwork. Found all the shows I had been in. All the travel documents. What the heck-most was from before I was 25. I was working full time, doing theatre, training at the gym (a spot of stunt training too), doing charity, and travelling. …

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life with disability/illness

fatigue

I struggle to explain how I can tell I have fatigue versus being tired. It does physically feel like pressure. But I think that veers a bit close to what is said is experienced in high anxiety. It’s not the same. This is more like standing chest high in water and trying to breathe. It’s not …

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life with disability/illness

Why I never ask myself “why me” about my disease.

There is a black hole in the middle of our galaxy, probably in the middle of every galaxy. Our sun which we need to live also kills us.* Every living thing either depends on the lives of others or has others depend on them. There is an electromagnetic dawn chorus most of us never hear. Some …

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life with disability/illness

okay, interesting reading on bone loss

I was trying to find some real research on costs and benefits of non-medicine therapy (diet and exercise) and it’s pretty much all reliant on assumptions. Also no real follow up. Long term is not two years. Not when you are living with a genuinely long term disease. For example, the bone loss thing. It’s …

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life with disability/illness

fatigue

Having constant fatigue is like driving without a fuel gauge. You can often make calculations to make sure you don’t get into trouble. But in order to do that you need to make calculations constantly- fuel in fuel out is not always a simple measure of how far you go but also about conditions and …

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life with disability/illness

lessons from masterchef australia

I really hope the executives who are in charge of Masterchef Australia continue to let it be the incredibly positive bright spot it is. I have watched since the beginning and am so very happy to find people in recent years have come to love it as much as I do.   So, I recently had …

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1500-1600 life with disability/illness projects: early historic

cleves progress

Today the carpal tunnel injections have proven their worth 🙂 If I can do this one or two more times before I have to have surgery I’ll be happy. Sounds like I need my ulna’s chopped off sooner, but, maybe? Also I may have gone through 1/4 of my Hot Cinnamon Sunset tea. Now if …

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