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a recommendation- health

So for regular readers or those who simply land on my site or page can tell, I don’t do paywalls, nor sponsorship. I want to be free to promote things that have really made an impact 🙂 I don’t like putting bad feedback out there as it is so permanent and may still be around …

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fitting a fashionable shape site

Workshops- A Modular Frock – The Gilded Age

Yep, doing another series of workshops this time with a “single” focus of getting participants a full set of patterns that work together to make a frock from 1870-1900. Where: Waitakere Central Library, Auckland, New Zealand When: Saturday afternoons Dates- TBC, after the Steampunk Festival but over June and July. The basic frock will be plain, but …

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life with disability/illness

the steroid shot has worked

While I wouldn’t say it’s a cure it has helped decrease local swelling to the point I can genuinely test what is going on. http://www.fprmed.com/Pages/Trauma/Costochondral_Seperation.html Go down two more ribs and that’s where mine is. I finally was able to do a very gentle test of the hook manoevre and I did at least find …

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life with disability/illness

sigh

I have one of the only, if not the only plugin capable of reblogging instagram posts. But It doesn’t actually automatically do so and I have to set it to pending/draft then edit to “published” because otherwise it just shows the code- my guess is the post publishes faster than WP can add the media …

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life with disability/illness

So tired again

I try to not be around people (online or off) when I am this tired, and now I have a lovely reminder why- I simply can’t communicate properly. And on the other hand when I am this tired my eyes tend to go dead and I look furious. Actually I look in pain but it …

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life with disability/illness

final round of tidying

(it is a happy post, honest!) Managed to go through all my paperwork. Found all the shows I had been in. All the travel documents. What the heck-most was from before I was 25. I was working full time, doing theatre, training at the gym (a spot of stunt training too), doing charity, and travelling. …

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life with disability/illness

fatigue

I struggle to explain how I can tell I have fatigue versus being tired. It does physically feel like pressure. But I think that veers a bit close to what is said is experienced in high anxiety. It’s not the same. This is more like standing chest high in water and trying to breathe. It’s not …

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All my post history is back!

The year of most progress, 2014 is now back! So tags and categories actually work and I am now able to actually search the blog and find posts to share information/ Such a relief! There are though a bunch of drafts I thought were from this time, but they seem to just be posts I …

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life with disability/illness

Why I never ask myself “why me” about my disease.

There is a black hole in the middle of our galaxy, probably in the middle of every galaxy. Our sun which we need to live also kills us.* Every living thing either depends on the lives of others or has others depend on them. There is an electromagnetic dawn chorus most of us never hear. Some …

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life with disability/illness

okay, interesting reading on bone loss

I was trying to find some real research on costs and benefits of non-medicine therapy (diet and exercise) and it’s pretty much all reliant on assumptions. Also no real follow up. Long term is not two years. Not when you are living with a genuinely long term disease. For example, the bone loss thing. It’s …

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