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very sore indeed

I may have to face the fact that my infusions are wearing out and I need to get ahead of the pain rather than treat it as it happens. I can hardly walk at the moment due to weirdness. I think it’s a mix of nerve pinching and muscle wasting after that nasty nasty bug.

I’m wearing heavy boots, it’s true but that’s also to try and build up strength again. I tried going for a walk and got to the end of the street and wanted to go back home :/ And today it was just the length of the drive! I’ve been standing and doing things but actually walking- my legs feels half numb like I’ve been sitting on my knees for a while!

But my wrists are also really acting up (note- hand surgeon appointment next month) and I’m sore all over like with the flu. So that’s usually the start of a big flare. But I don’t want to take steroids. I may try upping my Leflunomide again. Right yes. It’ll take longer but will last longer.