ATTEMPTING TO CROSSPOST TO LJ (BLOG LINK THIS TIME!)

ATTEMPTING TO CROSSPOST TO LJ (BLOG LINK THIS TIME!)

by admin, December 9, 2014

I finally submitted a ticket to lj:

So I hope I can start crossposting again. It is me being blocked at LJ’s end, not my host as I have tried several plugins.

 

So a health update:

I am very unwell due to the Rituximab. However I begged for children’s paracetamol (Pamol) and it works. It works so much better and faster than trying to choke back on pills right now 🙂

I am vomitting every night due to feverish symptoms and pain. It’s finally eased tonight and I think it is a mix of the immune system settling down (the treatment basically is a huge kickstart of one part of the immune system KILL ALL THE CD20 B CELLS!!!!!!!!! so I am awash in toxins from cell death. But those cells are part of the immune system so I also have to be careful about catching bugs those cells target (usually bacterial.)

So it’s a bit messy right now. But, as I mentioned the kiddie medicine works better than adult so I highly recommend it for my fellow spoonies. I’m taking a 10ml dose every 2 hours (well a desert spoon every 45-60mins) as the dose is supposed to be 20ml-2 hours. But I need to overlap doses that little bit.

Anyway. So if LJ is able to help, hooray! I won’t have to try and copy paste each post each time- which is difficult for my hands on this desktop, more difficult on my netbook (no mouse) and impossible by phone.

Pleasepleaseplease 🙂