Just past weekly infusion update

A few days without extra steroids and I can feel it. There are little signs the infusion is doing something though: tiny infections in my cuticles. They aren’t too bad but I also had a splinter that threatened to turn into an abcess. So I’m seeing my GP. Also scratchy throat. And a bit rashy- when warm I get pin prick like red dots.

Also a lot of neck pain. So this is as much time on the computer as I can spend.

Watching a lot of documentaries. Still can’t walk very far, and still get very tired. Got a few weeks before any real change is noticeable and 6 months before any remission.