pieces of never: lovelyday2bme: danathepaina: cheshirecopycat: shawshankedgillian15:…
So much pain ugh… Yet I know when I’m old it’ll be worse.
So you’re never gonna get better?
Don’t remind me…
That’s the deal with incurable chronic illness. You never get better…
Might . not will. Remission rates are around 30 for some auto immune diseases. 12 years and counting and I sill have disease activity and still have damage that has long past repair with anything but very primative hack it out surgery. I have short bursts of remission.
I have tried the strongest biologics and nothing at all as well as alternatives. My body resists them all in some way. But others have had success.
do *not* suggest anything *helpful* because it suggests I have had no proactivity in my health choices. It invalidates my 12 years of looking for relief or slow down of my disease.
Yes, mine will be worse. My surgery will leave me pretty deformed and with great difficulty dressing. I may luck out and the hip and knee damage may or may not get worse.
There is so much more but too much for late night tumblr.
But you don’t ever know and I try to live day for day and live well with what my body prefers.